Summary of American Epilepsy  Society Statements and Letters

Make no mistake... Charlotte's Web IS NOT A PRESCRIPTION MEDICATION AND IS NOT ENDORSED BY THE AES.

President of American Epilepsy Society statement on Charlotte's Web oil-   "A study by a team from Children's Hospital Colorado that was presented during the AES Annual meeting in December 2014 and has recently been accepted for publication in the journal Epilepsy & Behavior, found that artisanal "high CBD" oils resulted in no significant reduction in seizures in the majority of patients and in those for whom the parents reported improvements, these improvements were not associated with improvement in electroencephalograms (EEGs), the gold standard monitoring test for people with epilepsy.

The anecdotal results of a few families in Colorado, shared in the media, should not be the basis for law making. The rush by states to pass CBD legislation has created an unusual situation where people with epilepsy and their families are demanding access to a highly variable homegrown substance that may or may not be beneficial and the medical and scientific community lacks the necessary efficacy and safety data to make good treatment decisions regarding cannabis for people with epilepsy, especially in children.."

2016 3 11 Letter to PA Legislator 

American Epilepsy Society Letter to Gov. Otter, Idaho

Dr. Wechsler, Medical Director Idaho Comprehensive Epilepsy Center

The difference is that the pharmaceutical medications are chemicals that have been carefully tested whereas supplements are chemicals that have not been carefully tested. It is only with careful testing that side effects can be identified. CBD has not been tested carefully. This does not mean that it does not have side effects, it just means the side effect profile has not been fully defined.My fear is that, if CBD is made widely available in an uncontrolled way, families will run to it because of the hype, often using it to replace rather than augment current therapy. Some children might benefit. But it will not work for everyone and, if it is used as a stand alone therapy in children for whom it does not work, then some of those children will die. These children need to be protected from uncontrolled seizures but they also need to be protected from unproven therapies. Sadly, the good intentions of their desperate, loving parents have the potential to put some of these children in harm’s way.
 

Details  of 3 studies    Artisanal CBD--Dr. Chapman and colleagues at Colorado Children’s Hospital and the University of Colorado reviewed cases of 58 children with severe epilepsy who came into their care while using artisanal CBD. Parents reported seizure reduction of 50% or more in only one-third of patients, but except for two children there was no improvement in their EEGs. Adverse effects occurred in 47% of patients: 21% experienced increased or new seizures; 10% suffered developmental regression with one patient needing intubation; one patient died.               

Page not found

The requested page "/charlottes-web" could not be found.